Page 1: Participant information sheet

PARTICIPANT INFORMATION SHEET (Version 1.1, Date: 01/11/20)

Project Title: Menstrual cycle education in schools within the UK

Contact Details:

Dr Natalie Brown, 07902169696, Natalie.brown@swansea.ac.uk

You have been invited to take part in this study, which is being conducted to understand more about education of the menstrual cycle provided within schools across the UK. We would like to thank you for your time and interest in completing this questionnaire.

What is the purpose of the study?

A survey conducted by Plan UK identified 14% of teenage girls admitted they did not know what was happening when they started their period and 1 in 4 said they did not feel they knew what to do when they started their period. The aim of the questionnaire is to gather data about education provided on the menstrual cycle within UK schools to help identify how we can better support young girls to understand and manage their menstrual cycle. We are hoping to ascertain if any education is provided, whether barriers exist making this task difficult to achieve and whether if any support and guidance is provided to teachers to provide education on this topic. 

Why have I been chosen?

You have been chosen because you are a qualified teacher. It must be stated that taking part in this study is on a voluntary basis and you are free to withdraw from the study at any time without the need for an explanation or prior risk; there will be no penalty for non-participation or withdrawal, however as the questionnaire is anonymous, once this has been submitted we will be unable to withdraw your response.

What will happen to me if I take part?

Participation in this study involves completing the anonymous questionnaire which follows this page, once you have clicked to confirm that you agree to participate.  The questionnaire should take you approximately 8 minutes 

What are the possible disadvantages of taking part?

The risks associated with participating in a questionnaire are minimal, meaning no greater than everyday experiences. On rare occasions, you may feel uncomfortable and unsettled answering certain questions. There are no right or wrong answers, so please answer honestly as it will give a more accurate representation of the data we are trying to analyse. If you do feel upset by any content in the questionnaire, you are advised to contact someone you trust and you are always welcome to contact the lead for the research team, whose email address is provided above. 

What are the possible benefits of taking part?

We can’t promise that the study will benefit you, however, the information gained will hopefully inform education relating to the menstrual cycle. The results from this study could potentially inform future practice to allow improved education, understanding and awareness of the menstrual cycle.

Will my taking part in the study be kept confidential?

Due to the nature of this anonymous survey, your identity will not be recorded.

Data protection and confidentiality Your data will be processed in accordance with the Data Protection Act 2018 and the General Data Protection Regulation 2016 (GDPR). All information collected about you will be kept strictly confidential. Your data will only be viewed by the researcher/research team.  All electronic data will be stored on two password-protected computers held by the research team file.  All paper records will be stored in a locked filing cabinet in Swansea University. Your consent information will be kept separately from your responses to minimise risk in the event of a data breach. Please note that the data we will collect for our study will be made anonymous, you will be assigned a different name in the interview transcripts and the final paper produced, thus it will not be possible to identify and remove your data at a later date, should you decide to withdraw from the study. Therefore, if at the end of this research you decide to have your data withdrawn, please let us know before you leave. Data Protection Privacy Notice The data controller for this project will be Swansea University. The University Data Protection Officer provides oversight of university activities involving the processing of personal data, and can be contacted at the Vice Chancellors Office. Your personal data will be processed for the purposes outlined in this information sheet. Standard ethical procedures will involve you providing your consent to participate in this study by completing the consent form that has been provided to you. The legal basis that we will rely on to process your personal data will be processing is necessary for the performance of a task carried out in the public interest. This public interest justification is approved by the College of Engineering Research Ethics Committee, Swansea University. The legal basis that we will rely on to process special categories of data will be processing is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes. How long will your information be held? We will hold any personal data and special categories of data no longer than is necessary for the purposes of this study. What are your rights? You have a right to access your personal information, to object to the processing of your personal information, to rectify, to erase, to restrict and to port your personal information. Please visit the University Data Protection webpages for further information in relation to your rights. Any requests or objections should be made in writing to the University Data Protection Officer:- University Compliance Officer (FOI/DP), Vice-Chancellor’s Office, Swansea University, Singleton Park, Swansea, SA2 8PP. Email: dataprotection@swansea.ac.uk  How to make a complaint If you are unhappy with the way in which your personal data has been processed you may in the first instance contact the University Data Protection Officer using the contact details above. If you remain dissatisfied then you have the right to apply directly to the Information Commissioner for a decision. The Information Commissioner can be contacted at: - Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF. www.ico.org.uk  What if I have any questions? If you have any further queries, please do not hesitate to contact any of the research team who will be more than happy to answer any questions or concerns that you may have about the study. the project has been approved by the College of Engineering Research Ethics Committee at Swansea University. If you have any questions regarding this, any complaint, or concerns about the ethics and governance of this research please contact the Chair of the College of Engineering Research Ethics Committee, Swansea University: coe-researchethics@swansea.ac.uk. The institutional contact for reporting cases of research conduct is Registrar & Chief Operating Officer Mr Andrew Rhodes. Email: researchmisconduct@swansea.ac.uk. Further details are available at the Swansea University webpages for Research Integrity. http://www.swansea.ac.uk/research/researchintegrity/.” 

1.1. I confirm that I have read and understood the information sheet dated 01/11/2020, version number 1.1 and that I have the opportunity to contact members of the research team to ask questions. I understand that my participation is voluntary, and the questionnaire responses are completely anonymous, even to the research team. I understand that my responses for each question are automatically saved when I answer them, and no identifiable information is recorded in this study. I understand that I am unable to withdraw my data once I have provided a response. I understand that data obtained may be looked at by responsible individuals from Swansea University or from regulatory authorities where it is relevant to my taking part in research. I give permission for these individuals to have access to these records. I understand that data I provide may be used in reports and academic publications in anonymous fashion. Required